Alcance de la calidad de vida en atención médica

Autores

DOI:

https://doi.org/10.5294/pebi.2020.24.1.2

Palavras-chave:

Qualidade de vida, dignidade, respeito, valor da vida, bioética

Resumo

Quality of Life Reach in Medical Care

Alcance da qualidade de vida no atendimento médico

A expressão “qualidade de vida” tem um uso cada vez mais generalizado na prática biomédica, em especial em situações de final da vida. A experiência demonstra que, muitas vezes, essa expressão é empregada com alcances muito diversos, em ocasiões contrapostos. Neste artigo, são apresentados os resultados de uma revisão bibliográfica que mostra os diferentes posicionamentos e é proposta uma delimitação da temática. A análise compara as expressões “qualidade de vida”, “dignidade humana” e “valor da vida humana”.

Para citar este artículo / To reference this article / Para citar este artigo

Páez GLópez-Gabeiras MPMoreno-D’Anna M. Alcance de la “calidad de vida” en atención médica. Pers Bioet. 2020;24(1):14-27. DOI: https://doi.org/10.5294/pebi.2020.24.1.2

Recibido: 06/11/2019

Aceptado: 04/03/2020

Publicado: 07/05/2020

Downloads

Não há dados estatísticos.

Biografia do Autor

Gustavo Páez, Universidad Austral

Integrante del Departamento de Bioética de la Universidad Austral. Capellán del Hospital Austral.

Referências

Herrera PA, Guzmán HA. Reflexiones sobre calidad de vida, dignidad y envejecimiento. Rev Med Clin Condes. 2012;23(1):65-76. Disponible en: https://www.clinicalascondes.cl/Dev_CLC/media/Imagenes/PDF%20revista%20m%C3%A9dica/2012/1%20enero/Reflexiones-CalidadV-11.pdf

Organización Mundial de la Salud. WHOQOL Measuring quality of life. 1997. Disponible en: http://www.who.int/mental_health/media/68.pdf

Matei IV, Barbu CM, Negulescu MC. The consumer protection. A bioethics problem in health care. Rev Rom Bioet. 2015;13(3).

Montazeri A. Quality of life data as prognostic indicators of survival in cancer patients: an overview of the literature from 1982 to 2008. Health Qual Life Outcomes. 2009;7:102. https://doi.org/10.1186/1477-7525-7-102

Lin YP, Tsai YF. Maintaining patients’ dignity during clinical care: A qualitative interview study. Journal of advanced nursing. 2011; 67: 340-8. https://doi.org/10.1111/j.1365-2648.2010.05498.x

Ranallo L. Improving the quality of end-of-life care in pediatric oncology patients through the early implementation of palliative care. J Pediatr Oncol Nurs. 2017;34(6): 474-380. https://doi.org/10.1177/1043454217713451

Watts G. John Harris: Leading libertarian bioethicist. The Lancet. 2007;370:1411. Disponible en: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(07)61595-5/fulltext

Urzúa A, Caqueo-Urízar A. Calidad de vida: una revisión teórica del concepto. Terap Psicol. 2012;30(1):61-71. https://doi.org/10.4067/S0718-48082012000100006

Gamboa-Bernal G, Echarte-Alonso LE. ¿Es posible medir la calidad de vida en el ámbito asistencial? Historia, límites y posibilidades. Cuadernos de Bioética. 2016;17(89):13-27. Disponible en: http://aebioetica.org/revistas/2016/27/89/13.pdf

Pastor García LM. ¿Qué significado hay que dar al término “calidad de vida” en bioética? Cuadernos de Bioética. 2006;(61):401-9. Disponible en: http://aebioetica.org/revistas/2006/17/3/61/401.pdf

The WHOQOL Group. The World Health Organization Quality of life Assesment (WHOQOL): Development and general psichometric properties. Soc Sci Med. 1998;46(12):1569-85. DOI: https://doi.org/10.1016/S0277-9536(98)00009-4

Romero M, Vivas-Consuelo D, Alvis-Guzmán N. Is Health Related Quality of Life (HRQoL) a valid indicator for health systems evaluation? SpringerPlus. 2013;2(664):1-7. DOI: https://doi.org/10.1186/2193-1801-2-664

Bakas T. et al. Systematic review of health-related quality of life models Health Qual. Life Outcomes. 2012;10(134):1-12. DOI: https://doi.org/10.1186/1477-7525-10-134

Puyol González A. La antropología moral de la igualdad. Isegoría. 2001;24:223-49. Disponible en: http://isegoria.revistas.csic.es/index.php/isegoria/article/view/614/615

Glover J. Utilitarianism and its Critics. New York: Macmillan Publishing Company; 1990.

Welfare. Cambridge Advanced Learner’s Dictionary & Thesaurus. 2018. Disponible en: https://dictionary.cambridge.org/es/diccionario/ingles/welfare

Loon MS et al. Quality of life in a broader perspective: Does ASCOT reflect the capability approach? Qual Life Res. 2018;27:1181-9. DOI: https://doi.org/10.1007/s11136-017-1756-5

Beaman LG, Steele C. Transcendence/religion to immanence/non religion in assisted dying. Int J Hum Rights Healthc. 2018;11(2):129-43. DOI: https://doi.org/10.1108/IJHRH-09-2017-0051

Miller-Lewis L. et al. Correlates of perceived death competence: What role does meaning-in-life and quality-of-life play? Palliat Support Care. 2019;17(5):550-60. DOI: https://doi.org/10.1017/S1478951518000937

Empaire G. Calidad de atención médica y principios éticos. Acta Bioeth. 2010;16(2):127-32. DOI: https://doi.org/10.4067/S1726-569X2010000200004

Giselsson K. Rethinking dignity. Hum Rights Rev. 2018;19:331-48. DOI: https://doi.org/10.1007/s12142-018-0501-y

Thiel M. Human dignity: Intrinsic or relative value? Int J Bioeth. 2010;21(3):51-62. DOI: https://doi.org/10.3917/jib.214.0051

von Andreas P. Lebensunwertes Leben? Teil 1: Euthanasie in Nazideutschland. Anregungen zu einem (selbst)bewussteren Leben; 1995.

Grodin MA, et al. The nazi physicians as leaders in eugenics and “euthanasia”: Lessons for today. Am J Public Health. 2018;108(1):53-7. DOI: https://doi.org/10.2105/AJPH.2017.304120

Lima NS, Ormart EB. La généalogie de la Bioéthique. J Int Bioéth d’Éth Sci. 2016;27(4):23-38. DOI: https://doi.org/10.3917/jib.274.0023

Lesley B. Patient dignity in an acute hospital setting: A case study. Int J Nurs Sci. 2009;46:23-37. DOI: https://doi.org/10.1016/j.ijnurstu.2008.08.003

Staffen MR, Arshakyan M. About the principle of dignity: Philosophical foundations and Legal Aspects. 2017;75:43-62. DOI: https://doi.org/10.5007/2177-7055.2017v38n75p43

Organización de las Naciones Unidas. Declaración Universal de los Derechos Humanos [Internet]; 1948. Disponible en: http://www.un.org/es/universal-declaration-human-rights/, fecha de consulta: 1 de abril de 2018.

Errasti-Ibarrondo, B. et al. Modelos de dignidad en el cuidado: contribuciones para el final de la vida. Cuadernos de Bioética. 2014;25(2):243-56. Disponible en: http://aebioetica.org/revistas/2014/25/84/243.pdf

Nordenfelt L, Edgar A. The four notions of dignity. Qual Ageing. 2005;6:17-21. DOI: https://doi.org/10.1108/14717794200500004

Clark J. Defining the concept of dignity and developing a model to promote its use in practice. Nursing times. 2010;106:16-9. Disponible en: https://www.nursingtimes.net/clinical-archive/patient-experience/defining-the-concept-of-dignity-and-developing-a-model-to-promote-its-use-in-practice-21-05-2010/

Lin YP, Tsai YF. Chen HF. Dignity in care in the hospital setting from patients’ perspectives in Taiwan: a descriptive qualitative study. J Clin Nurs. 2011 Mar;20(5-6):794-801. DOI: https://doi.org/10.1111/j.1365-2702.2010.03499.x

van Gennip IE, et al. The development of a model of dignity in illness based on qualitative interviews with seriously ill patients. Int J Nurs Sci. 2013;50(8):1080-9. DOI: https://doi.org/10.1016/j.ijnurstu.2012.12.014

Chochinov H, et al. Dignity in the terminally ill: A developing empirical model. Soc Sci Med. 2002;54:433-43.

Aydın Er R, et al. Respectful care of human dignity: How is it perceived by patients and nurses? J Med Ethics. 2018;44:675-80. DOI: https://doi.org/10.1136/medethics-2017-104666

Sossauer et al. Vulnerability identified in clinical practice: A qualitative analysis. BMC Medical Ethics. 2019;20:87. DOI: https://doi.org/10.1186/s12910-019-0416-4

Aparisi-Miralles A. El principio de la dignidad humana como fundamento de un bioderecho global. Cuadernos de Bioética. 2013;XXIV (2):201-21. Disponible en: http://aebioetica.org/revistas/2013/24/81/201.pdf

Pols J, Pasveer B, Willems D. The particularity of dignity: Relational engagement in care at the end of life. Med Health Care Philos. 2018;21:89-100. DOI: https://doi.org/10.1007/s11019-017-9787-9

Jia H, et al. Impact of depression on quality-adjusted life expectancy (QALE) directly as well as indirectly through suicide. Soc Psychiatry Psychiatr Epidemiol. 2015;50(6):939-49. DOI: https://doi.org/10.1007/s00127-015-1019-0

Carbone VL. Raza y racismo: ¿el motor de la historia de los Estados Unidos? Un acercamiento a la relación entre raza, racismo y clase en la historia norteamericana. Ponencia presentada en XIV Jornadas Interescuelas/Departamentos de Historia. Departamento de Historia de la Facultad de Filosofía y Letras. Universidad Nacional de Cuyo, 2013.

Sulmasy DP. Speaking of the value of life. Kennedy Inst Ethics J. 2011;21(2):181-99.

Schmidt H. Whose dignity? Resolving ambiguities in the scope of “human dignity” in the Universal Declaration on Bioethics and Human Rights. J Med Ethics. 2007;33:578-84. DOI: https://doi.org/10.1136/jme.2006.017699

ANA. Nurses’ Roles and Responsibilities in Providing Care and Support at the End of Life. 2016. Disponible en: https://www.nursingworld.org/practice-policy/nursing-excellence/official-position-statements/id/nurses-roles-and-responsibilities-in-providing-care-and-support-at-the-end-of-life/

The Royal Australasian College of Physicians. Improving Care at the End of Life: Our Roles and Responsibilities. [internet] 2016. Disponible en: https://www.racp.edu.au/docs/default-source/advocacy-library/pa-pos-end-of-life-position-statement.pdf

Colby WH, et al. The National Consensus Project for Quality Palliative Care Clinical Practice Guidelines Domain 8: Ethical and Legal Aspects of Care. HEC Forum. 2010;22:117-31. DOI: https://doi.org/10.1007/s10730-010-9128-3

Publicado

2020-05-08

Como Citar

Páez, G., López-Gabeiras, M. del P., & Moreno-D’Anna, M. (2020). Alcance de la calidad de vida en atención médica. Persona Y Bioética, 24(1), 14–27. https://doi.org/10.5294/pebi.2020.24.1.2

Edição

Seção

Artigos de revisão