Alcance de la calidad de vida en atención médica
DOI:
https://doi.org/10.5294/pebi.2020.24.1.2Keywords:
Quality of life, dignity, respect, value of life, bioethicsAbstract
Quality of Life Reach in Medical Care
Alcance da qualidade de vida no atendimento médico
The term quality of life has increasingly widespread use in biomedical practice, especially in end-of-life situations. Experience shows that the expression is often used with very different —and sometimes conflicting— scopes. The present article presents the results of a literature review that show diverse positions, while delimitating the subject. The analysis compares the terms “quality of life,” “human dignity,” and “value of human life.”
Para citar este artículo / To reference this article / Para citar este artigo
Páez G, López-Gabeiras MP, Moreno-D’Anna M. Alcance de la “calidad de vida” en atención médica. Pers Bioet. 2020;24(1):14-27. DOI: https://doi.org/10.5294/pebi.2020.24.1.2
Recibido: 06/11/2019
Aceptado: 04/03/2020
Publicado: 07/05/2020
Downloads
References
Herrera PA, Guzmán HA. Reflexiones sobre calidad de vida, dignidad y envejecimiento. Rev Med Clin Condes. 2012;23(1):65-76. Disponible en: https://www.clinicalascondes.cl/Dev_CLC/media/Imagenes/PDF%20revista%20m%C3%A9dica/2012/1%20enero/Reflexiones-CalidadV-11.pdf
Organización Mundial de la Salud. WHOQOL Measuring quality of life. 1997. Disponible en: http://www.who.int/mental_health/media/68.pdf
Matei IV, Barbu CM, Negulescu MC. The consumer protection. A bioethics problem in health care. Rev Rom Bioet. 2015;13(3).
Montazeri A. Quality of life data as prognostic indicators of survival in cancer patients: an overview of the literature from 1982 to 2008. Health Qual Life Outcomes. 2009;7:102. https://doi.org/10.1186/1477-7525-7-102
Lin YP, Tsai YF. Maintaining patients’ dignity during clinical care: A qualitative interview study. Journal of advanced nursing. 2011; 67: 340-8. https://doi.org/10.1111/j.1365-2648.2010.05498.x
Ranallo L. Improving the quality of end-of-life care in pediatric oncology patients through the early implementation of palliative care. J Pediatr Oncol Nurs. 2017;34(6): 474-380. https://doi.org/10.1177/1043454217713451
Watts G. John Harris: Leading libertarian bioethicist. The Lancet. 2007;370:1411. Disponible en: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(07)61595-5/fulltext
Urzúa A, Caqueo-Urízar A. Calidad de vida: una revisión teórica del concepto. Terap Psicol. 2012;30(1):61-71. https://doi.org/10.4067/S0718-48082012000100006
Gamboa-Bernal G, Echarte-Alonso LE. ¿Es posible medir la calidad de vida en el ámbito asistencial? Historia, límites y posibilidades. Cuadernos de Bioética. 2016;17(89):13-27. Disponible en: http://aebioetica.org/revistas/2016/27/89/13.pdf
Pastor García LM. ¿Qué significado hay que dar al término “calidad de vida” en bioética? Cuadernos de Bioética. 2006;(61):401-9. Disponible en: http://aebioetica.org/revistas/2006/17/3/61/401.pdf
The WHOQOL Group. The World Health Organization Quality of life Assesment (WHOQOL): Development and general psichometric properties. Soc Sci Med. 1998;46(12):1569-85. DOI: https://doi.org/10.1016/S0277-9536(98)00009-4
Romero M, Vivas-Consuelo D, Alvis-Guzmán N. Is Health Related Quality of Life (HRQoL) a valid indicator for health systems evaluation? SpringerPlus. 2013;2(664):1-7. DOI: https://doi.org/10.1186/2193-1801-2-664
Bakas T. et al. Systematic review of health-related quality of life models Health Qual. Life Outcomes. 2012;10(134):1-12. DOI: https://doi.org/10.1186/1477-7525-10-134
Puyol González A. La antropología moral de la igualdad. Isegoría. 2001;24:223-49. Disponible en: http://isegoria.revistas.csic.es/index.php/isegoria/article/view/614/615
Glover J. Utilitarianism and its Critics. New York: Macmillan Publishing Company; 1990.
Welfare. Cambridge Advanced Learner’s Dictionary & Thesaurus. 2018. Disponible en: https://dictionary.cambridge.org/es/diccionario/ingles/welfare
Loon MS et al. Quality of life in a broader perspective: Does ASCOT reflect the capability approach? Qual Life Res. 2018;27:1181-9. DOI: https://doi.org/10.1007/s11136-017-1756-5
Beaman LG, Steele C. Transcendence/religion to immanence/non religion in assisted dying. Int J Hum Rights Healthc. 2018;11(2):129-43. DOI: https://doi.org/10.1108/IJHRH-09-2017-0051
Miller-Lewis L. et al. Correlates of perceived death competence: What role does meaning-in-life and quality-of-life play? Palliat Support Care. 2019;17(5):550-60. DOI: https://doi.org/10.1017/S1478951518000937
Empaire G. Calidad de atención médica y principios éticos. Acta Bioeth. 2010;16(2):127-32. DOI: https://doi.org/10.4067/S1726-569X2010000200004
Giselsson K. Rethinking dignity. Hum Rights Rev. 2018;19:331-48. DOI: https://doi.org/10.1007/s12142-018-0501-y
Thiel M. Human dignity: Intrinsic or relative value? Int J Bioeth. 2010;21(3):51-62. DOI: https://doi.org/10.3917/jib.214.0051
von Andreas P. Lebensunwertes Leben? Teil 1: Euthanasie in Nazideutschland. Anregungen zu einem (selbst)bewussteren Leben; 1995.
Grodin MA, et al. The nazi physicians as leaders in eugenics and “euthanasia”: Lessons for today. Am J Public Health. 2018;108(1):53-7. DOI: https://doi.org/10.2105/AJPH.2017.304120
Lima NS, Ormart EB. La généalogie de la Bioéthique. J Int Bioéth d’Éth Sci. 2016;27(4):23-38. DOI: https://doi.org/10.3917/jib.274.0023
Lesley B. Patient dignity in an acute hospital setting: A case study. Int J Nurs Sci. 2009;46:23-37. DOI: https://doi.org/10.1016/j.ijnurstu.2008.08.003
Staffen MR, Arshakyan M. About the principle of dignity: Philosophical foundations and Legal Aspects. 2017;75:43-62. DOI: https://doi.org/10.5007/2177-7055.2017v38n75p43
Organización de las Naciones Unidas. Declaración Universal de los Derechos Humanos [Internet]; 1948. Disponible en: http://www.un.org/es/universal-declaration-human-rights/, fecha de consulta: 1 de abril de 2018.
Errasti-Ibarrondo, B. et al. Modelos de dignidad en el cuidado: contribuciones para el final de la vida. Cuadernos de Bioética. 2014;25(2):243-56. Disponible en: http://aebioetica.org/revistas/2014/25/84/243.pdf
Nordenfelt L, Edgar A. The four notions of dignity. Qual Ageing. 2005;6:17-21. DOI: https://doi.org/10.1108/14717794200500004
Clark J. Defining the concept of dignity and developing a model to promote its use in practice. Nursing times. 2010;106:16-9. Disponible en: https://www.nursingtimes.net/clinical-archive/patient-experience/defining-the-concept-of-dignity-and-developing-a-model-to-promote-its-use-in-practice-21-05-2010/
Lin YP, Tsai YF. Chen HF. Dignity in care in the hospital setting from patients’ perspectives in Taiwan: a descriptive qualitative study. J Clin Nurs. 2011 Mar;20(5-6):794-801. DOI: https://doi.org/10.1111/j.1365-2702.2010.03499.x
van Gennip IE, et al. The development of a model of dignity in illness based on qualitative interviews with seriously ill patients. Int J Nurs Sci. 2013;50(8):1080-9. DOI: https://doi.org/10.1016/j.ijnurstu.2012.12.014
Chochinov H, et al. Dignity in the terminally ill: A developing empirical model. Soc Sci Med. 2002;54:433-43.
Aydın Er R, et al. Respectful care of human dignity: How is it perceived by patients and nurses? J Med Ethics. 2018;44:675-80. DOI: https://doi.org/10.1136/medethics-2017-104666
Sossauer et al. Vulnerability identified in clinical practice: A qualitative analysis. BMC Medical Ethics. 2019;20:87. DOI: https://doi.org/10.1186/s12910-019-0416-4
Aparisi-Miralles A. El principio de la dignidad humana como fundamento de un bioderecho global. Cuadernos de Bioética. 2013;XXIV (2):201-21. Disponible en: http://aebioetica.org/revistas/2013/24/81/201.pdf
Pols J, Pasveer B, Willems D. The particularity of dignity: Relational engagement in care at the end of life. Med Health Care Philos. 2018;21:89-100. DOI: https://doi.org/10.1007/s11019-017-9787-9
Jia H, et al. Impact of depression on quality-adjusted life expectancy (QALE) directly as well as indirectly through suicide. Soc Psychiatry Psychiatr Epidemiol. 2015;50(6):939-49. DOI: https://doi.org/10.1007/s00127-015-1019-0
Carbone VL. Raza y racismo: ¿el motor de la historia de los Estados Unidos? Un acercamiento a la relación entre raza, racismo y clase en la historia norteamericana. Ponencia presentada en XIV Jornadas Interescuelas/Departamentos de Historia. Departamento de Historia de la Facultad de Filosofía y Letras. Universidad Nacional de Cuyo, 2013.
Sulmasy DP. Speaking of the value of life. Kennedy Inst Ethics J. 2011;21(2):181-99.
Schmidt H. Whose dignity? Resolving ambiguities in the scope of “human dignity” in the Universal Declaration on Bioethics and Human Rights. J Med Ethics. 2007;33:578-84. DOI: https://doi.org/10.1136/jme.2006.017699
ANA. Nurses’ Roles and Responsibilities in Providing Care and Support at the End of Life. 2016. Disponible en: https://www.nursingworld.org/practice-policy/nursing-excellence/official-position-statements/id/nurses-roles-and-responsibilities-in-providing-care-and-support-at-the-end-of-life/
The Royal Australasian College of Physicians. Improving Care at the End of Life: Our Roles and Responsibilities. [internet] 2016. Disponible en: https://www.racp.edu.au/docs/default-source/advocacy-library/pa-pos-end-of-life-position-statement.pdf
Colby WH, et al. The National Consensus Project for Quality Palliative Care Clinical Practice Guidelines Domain 8: Ethical and Legal Aspects of Care. HEC Forum. 2010;22:117-31. DOI: https://doi.org/10.1007/s10730-010-9128-3
Published
How to Cite
Issue
Section
License
Copyright (c) 2020 Persona y Bioética
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
Authors who publish with this journal agree to the following terms:
This journal and its papers are published with the Creative Commons License Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0). You are free to share copy and redistribute the material in any medium or format if you: give appropriate credit, provide a link to the license, and indicate if changes were made; don’t use our material for commercial purposes; don’t remix, transform, or build upon the material.