Toma de decisiones compartidas al final de la vida: un estudio cualitativo desde la bioética clínica
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https://doi.org/10.5294/pebi.2025.29.2.2Palabras clave:
Toma de decisiones conjunta, cuidados paliativos, bioética, autonomía personal, derecho a morir, familia, personalidad moralResumen
El objetivo de este estudio es explorar cómo pacientes, cuidadores y profesionales experimentan la toma de decisiones compartidas al final de la vida desde la bioética clínica. El método de estudio escogido es uno cualitativo exploratorio, de enfoque interpretativo, basado en entrevistas semiestructuradas a pacientes con enfermedad avanzada, cuidadores principales y profesionales de cuidados paliativos, analizadas mediante análisis temático reflexivo. En los resultados emergieron cinco temas: el deterioro clínico como límite práctico de la autonomía, la familia como mediadora y decisora, el profesional como traductor y garante moral, la urgencia clínica como obstáculo para la deliberación y la decisión como asentimiento progresivo. A modo de conclusión, la autonomía relacional y el asentimiento progresivo permiten resguardar la dignidad humana y legitimar decisiones clínicas complejas al final de la vida.
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Derechos de autor 2026 Kelvin J. Rojas Álvarez
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