Espiritualidad en el contexto de cuidados paliativos oncológicos dirigidos a personas mayores
DOI:
https://doi.org/10.5294/pebi.2020.24.2.2Palabras clave:
Espiritualidad, religiosidad, calidad de vida, cuidados paliativos oncológicos, formación, personas mayores.Resumen
Spirituality in Palliative Care Aimed at the Elderly
Espiritualidade no contexto de cuidados paliativos oncológicos a idosos
La última década ha estudiado la faceta “espiritualidad” en el contexto de cuidados paliativos oncológicos en personas mayores desde perspectivas cuantitativas, cualitativas y mixtas. El estudio busca develar –en este contexto– el significado de espiritualidad. Se revisa literatura indexada en buscador PubMed vía Medline entre los años 2009 y 2019, con acceso on line, a texto completo, en forma anónima, en idiomas inglés-español y, análogamente, con búsqueda manual en la Revista Medicina Paliativa. Los resultados arrojan 50 artículos de pertinencia temática y cuatro categorías. Se concluye que existen desafíos relacionados con el significado de espiritualidad y calidad de vida, formación y perspectivas de invetigación.
Para citar este artículo / To reference this article / Para citar este artigo
Arenas-Massa A, Nocetti-de la Barra A, Fraile-Ducviq CG. La espiritualidad en contexto de cuidados paliativos oncológicos dirigidos a personas mayores. Pers Bioet. 2020;24(2):136-150. DOI: https://doi.org/10.5294/pebi.2020.24.2.2
Recibido: 05/07/2020
Aceptado: 01/09/2020
Publicado: 27/11/2020
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Flores Castillo A. Cuidado y subjetivdad: una mirada a la atención domiciliaria. Santiago de Chile: División de Asuntos de Género, Cepal; 2012. 68 p. Disponible en: https://repositorio.cepal.org/handle/11362/5839
García Moyano, L. Ética del cuidado y su aplicación en la profesión enfermería. Acta Bioet. 2015;21(2):311-7. Disponible en: https://scielo.conicyt.cl/pdf/abioeth/v21n2/art17.pdf
Arenas A. Adulto mayor, nuevas perspectivas para el desarrollo humano. Santiago de Chile: Ediciones Universidad Finis Terrae; 2012.
Seccareccia D, Brown JB. Impact of Spirituality on Palliative Care Physicians: Personally and Professionally. J Palliat Med. 2009;12(9):805-9. DOI: https://doi.org/10.1089/jpm.2009.0038
Organización Mundial de la Salud (OMS). Cuidados paliativos. Nota descriptiva No 402. OMS; 2015. Disponible en: http://docplayer.es/85019548-Cuidados-paliativos-datos-y-cifras-nota-descriptiva-n-402-julio-de-2015.html
Organización Mundial de la Salud (OMS). Progreso de la Asamblea Mundial de la Salud en lo concerniente a enfermedades no transmisibles y medicina tradicional. Ginebra: OMS; 2014. Disponible en: https://www.who.int/es/news-room/detail/23-05-2014-world-health-assembly-progress-on-noncommunicable-diseases-and-traditional-medicine
Organización Mundial de la Salud (OMS). 67a Asamblea Mundial de la Salud, Punto 13.1 del orden del día provisional. Ginebra: OMS; 2014. Disponible en: http://apps.who.int/gb/ebwha/pdf_files/WHA67/A67_14-sp.pdf
Organización Mundial de la Salud (OMS). Informe Mundial sobre Envejecimiento y salud. Ginebra: OMS; 2015. Disponible en: https://www.who.int/ageing/publications/world-report-2015/es/
Filiberti A, Lucas Lucas R. La spiritualità nella sofferenza: dialoghi tra antropologia, psicologia e psicopatologia. Milano: Franco Angeli; 2006.
Grof C, Grof S. La tormentosa búsqueda del ser: una guía para el crecimiento personal a través de la emergencia espiritual. Barcelona: La Liebre de Marzo; 2001.
Organización de Estados Americanos (OEA). Convención Interamericana sobre la Protección de los Derechos Humanos de las Personas Mayores. Whashington: OEA; 2015. Disponible en: http://www.oas.org/es/sla/ddi/tratados_multilaterales_interamericanos_a-70_derechos_humanos_personas_mayores.asp
Organización de Estados Americanos (OEA). Convención Interamericana sobre la Protección de los Derechos Humanos de las Personas Mayores. Estado de Firmas y Ratificaciones. Whashington: OEA; 2015. Disponible en: http://www.oas.org/es/sla/ddi/tratados_multilaterales_interamericanos_A-70_derechos_humanos_personas_mayores_firmas.asp
Puchalski CM. Spirituality in geriatric palliative care. Clin Geriatr Med. 2015;31(2):245-52. DOI: https://doi.org/10.1016/j.cger.2015.01.011
Wittenberg E, Ragan SL, Ferrell B. Exploring nurse communication about spirituality. Am J Hosp Palliat Med. 2017;34(6):566-71. DOI: https://doi.org/10.1177/1049909116641630
Walker H, Waterworth S. New Zealand palliative care nurses experiences of providing spiritual care to patients with life-limiting illness. Int J Palliat Nurs. 2017;23(1):18-26. DOI: https://doi.org/10.12968/ijpn.2017.23.1.18
Goodhead A, Speck P, Selman L. ‘I think you just learnt as you went along’ – community clergy’s experiences of and attitudes towards caring for dying people: A pilot study. Palliat Med. 2016;30(7):674-83. DOI: https://doi.org/10.1177/0269216315625860
Moestrup L, Hvidt NC. Where is God in my dying? A qualitative investigation of faith reflections among hospice patients in a secularized society. Death Stud. 2016;40(10):618-29. DOI: https://doi.org/10.1080/07481187.2016.1200160
Bonavita A, Yakushko O, Morgan Consoli ML, Jacobsen S, Mancuso LL. Receiving spiritual care: Experiences of dying and grieving individuals. OMEGA - J Death Dying. 2018;76(4):373-94. DOI: https://doi.org/10.1177/0030222817693142
Pereira-Salgado A, Mader P, O’Callaghan C, Boyd L, Staples M. Religious leaders’ perceptions of advance care planning: A secondary analysis of interviews with Buddhist, Christian, Hindu, Islamic, Jewish, Sikh and Bahá’í leaders. BMC Palliat Care. 2017;16(1). DOI: http://doi.org/10.1186/s12904-017-0239-3
Reyes MM, de Lima L, Taboada P, Villarroel L, Vial J de D, Blanco O, et al. Escala numérica para evaluar síntomas espirituales en cuidados paliativos. Rev Médica Chile. 2017;145(6):747-54. DOI: https://doi.org/10.4067/s0034-98872017000600747
Rufino Castro M, Ramos Fernández A, Prada Jaimez ML, Güell Pérez E, Fariñas Balaguer O, Blasco Blasco T, et al. ¿Qué referencias espirituales verbalizan los pacientes atendidos por un equipo hospitalario de cuidados paliativos? Med Paliativa. 2016;23(4):172-8. DOI: https://doi.org/10.1016/j.medipa.2014.04.003
Vallurupalli M, Lauderdale K, Balboni MJ, Phelps AC, Block SD, Ng AK, et al. The role of spirituality and religious coping in the quality of life of patients with advanced cancer receiving palliative radiation therapy. J Support Oncol. 2012;10(2):81-7. DOI: https://doi.org/10.1016/j.suponc.2011.09.003
Bermejo Higuera JC, Lozano González B, Villacieros Durbán M, Gil Vela M. Atención espiritual en cuidados paliativos. Valoración y vivencia de los usuarios. Med Paliativa. 2013;20(3):93-102. DOI: https://doi.org/10.1016/j.medipa.2012.05.004
Rohde G, Kersten C, Vistad I, Mesel T. Spiritual well-being in patients with metastatic colorectal cancer receiving noncurative chemotherapy: A qualitative study. Cancer Nurs. 2017;40(3):209-16. DOI: https://doi.org/10.1097/NCC.0000000000000385
Phillips LL, Paukert AL, Stanley MA, Kunik ME. Incorporating religion and spirituality to improve care for anxiety and depression in older adults. Geriatrics. 2009;64(8):15-8. Disponible en: https://pubmed.ncbi.nlm.nih.gov/20722312/
Collin M. The search for a higher power among terminally ill people with no previous religion or belief. Int J Palliat Nurs. 2012;18(8):384-9. DOI: https://doi.org/10.12968/ijpn.2012.18.8.384
Barreto P, Fombuena M, Diego R, Galiana L, Oliver A, Benito E. Bienestar emocional y espiritualidad al final de la vida. Med Paliativa. 2015;22(1):25-32. DOI: https://doi.org/10.1016/j.medipa.2013.02.002
Santamaría Campos CC, Carrero Planes V, Navarro Sanz R. Sentido de dignidad al final de la vida: una aproximación empírica. Med Paliativa. 2014;21(4):141-52. DOI: https://doi.org/10.1016/j.medipa.2013.03.004
Asgeirsdottir GH, Sigurbjörnsson E, Traustadottir R, Sigurdardottir V, Gunnarsdottir S, Kelly E. “To Cherish Each Day as it Comes”: A qualitative study of spirituality among persons receiving palliative care. Support Care Cancer. 2013;21(5):1445-51. DOI: https://doi.org/10.1007/s00520-012-1690-6
Reig-Ferrer A, Ferrer-Cascales R, Fernández-Pascual MD, Albaladejo-Blázquez N, Priego Valladares M. Evaluación del bienestar espiritual en pacientes en cuidados paliativos. Med Paliativa. 2015;22(2):60-8. DOI: https://doi.org/10.1016/j.medipa.2013.03.008
Coats H, Crist JD, Berger A, Sternberg E, Rosenfeld AG. African American elders’ serious illness experiences: Narratives of “God Did,” “God Will,” and “Life is Better”. Qual Health Res. 2017;27(5):634-48. DOI: https://doi.org/10.1177/1049732315620153
Ross L, Austin J. Spiritual needs and spiritual support preferences of people with end-stage heart failure and their carers: implications for nurse managers. J Nurs Manag. 2015;23(1):87-95. DOI: https://doi.org/10.1111/jonm.12087
Chang B-H, Stein NR, Trevino K, Stewart M, Hendricks A, Skarf LM. Spiritual needs and spiritual care for veterans at end of life and their families. Am J Hosp Palliat Med. 2012;29(8):610-7. DOI: https://doi.org/10.1177/1049909111434139
Selman L, Speck P, Gysels M, Agupio G, Dinat N, Downing J, et al. ‘Peace’ and ‘life worthwhile’ as measures of spiritual well-being in African palliative care: a mixed-methods study. Health Qual Life Outcomes. 2013;11(1):94. DOI: https://doi.org/10.1186/1477-7525-11-94
Paiva SR Bianca, Carvalho AL, Lucchetti G, Barroso EM, Paiva CE. “Oh, yeah, I’m getting closer to god”: spirituality and religiousness of family caregivers of cancer patients undergoing palliative care. Supp Care Cancer. 2015;23(8):2383-9. DOI: https://doi.org/10.1007/s00520-015-2604-1
Rochmawati E, Wiechula R, Cameron K. Centrality of spirituality/religion in the culture of palliative care service in Indonesia: An ethnographic study: Centrality of spirituality in palliative care. Nurs Health Sci. 2018;20(2):231-7. DOI: https://doi.org/10.1111/nhs.12407
Bovero A, Leombruni P, Miniotti M, Rocca G, Torta R. Spirituality, quality of life, psychological adjustment in terminal cancer patients in hospice. Eur J Cancer Care. 2016;25(6):961-9. DOI: https://doi.org/10.1111/ecc.12360
Lucette A, Brédart A, Vivat B, Young T. Pilot-testing the French version of a provisional European Organisation for Research and Treatment of Cancer (EORTC) measure of spiritual well-being for people receiving palliative care for cancer: Pilot-test of a French spiritual well-being measure. Eur J Cancer Care. 2014;23(2):221-7. DOI: https://doi.org/10.1111/ecc.12107
Alcorn SR, Balboni MJ, Prigerson HG, Reynolds A, Phelps AC, Wright AA, et al. “If God wanted me yesterday, I wouldn’t be here today”: Religious and spiritual themes in patients’ experiences of advanced cancer. J Palliat Med. 2010;13(5):581-8. DOI: https://doi.org/10.1089/jpm.2009.0343
Dobratz MC. “All my saints are within me”: Expressions of end-of-life spirituality. Palliat Support Care. 2013;11(3):191-8. DOI: https://doi.org/10.1017/S1478951512000235
Camargos MG de, Paiva CE, Barroso EM, Carneseca EC, Paiva BSR. Understanding the differences between oncology patients and oncology health professionals concerning spirituality/religiosity: A cross-sectional study. Medicine. 2015;94(47):e2145. DOI: https://doi.org/10.1097/MD.0000000000002145
Boucher NA. Faith, family, filiality, and fate: Dominican and Puerto Rican elders’ perspectives on end-of-life decisions. J Appl Gerontol. 2017;36(3):351-72. DOI: https://doi.org/10.1177/0733464815627958
Bernard M, Strasser F, Gamondi C, Braunschweig G, Forster M, Kaspers-Elekes K, et al. Relationship between spirituality, meaning in life, psychological distress, wish for hastened death, and their influence on quality of life in palliative care patients. J Pain Symptom Manage. 2017;54(4):514-22. DOI: https://doi.org/10.1016/j.jpainsymman.2017.07.019
Asgeirsdottir GH, Sigurdardottir V, Gunnarsdottir S, Sigurbjörnsson E, Traustadottir R, Kelly E, et al. Spiritual well-being and quality of life among Icelanders receiving palliative care: data from Icelandic pilot-testing of a provisional measure of spiritual well-being from the European Organisation for Research and Treatment of Cancer. Eur J Cancer Care. 2017;26(2):e12394. DOI: https://doi.org/10.1111/ecc.12394
Gaudette H, Jankowski KRB. Spiritual coping and anxiety in palliative care patients: A pilot study. J Health Care Chaplain. 2013;19(4):131-9. DOI: https://doi.org/10.1080/08854726.2013.823785
Kruizinga R, Scherer-Rath M, Schilderman JBAM, Weterman M, Young T, van Laarhoven HWM. Images of God and attitudes towards death in relation to spiritual wellbeing: an exploratory side study of the EORTC QLQ-SWB32 validation study in palliative cancer patients. BMC Palliat Care. 2017;16(1). Disponible en: https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-017-0251-7
Vivat B, Young TE, Winstanley J, Arraras JI, Black K, Boyle F, et al. The international phase 4 validation study of the EORTC QLQ-SWB32: A stand-alone measure of spiritual well-being for people receiving palliative care for cancer. Eur J Cancer Care. 2017;26(6):e12697. DOI: https://doi.org/10.1111/ecc.12697
Vespa A, Giulietti MV, Spatuzzi R, Fabbietti P, Meloni C, Gattafoni P, et al. Validation of brief multidimensional spirituality/religiousness inventory (BMMRS) in Italian adult participants and in participants with medical diseases. J Relig Health. 2017;56(3):907-15. DOI: https://doi.org/10.1007/s10943-016-0285-9
Delgado-Guay MO, Chisholm G, Williams J, Frisbee-Hume S, Ferguson AO, Bruera E. Frequency, intensity, and correlates of spiritual pain in advanced cancer patients assessed in a supportive/palliative care clinic. Palliat Support Care. 2016;14(4):341-8. DOI: https://doi.org/10.1017/s147895151500108x
Winkelman WD, Lauderdale K, Balboni MJ, Phelps AC, Peteet JR, Block SD, et al. The relationship of spiritual concerns to the quality of life of advanced cancer patients: Preliminary findings. J Palliat Med. 2011;14(9):1022-8. DOI: https://doi.org/10.1089/jpm.2010.0536
Egan R, MacLeod R, Jaye C, McGee R, Baxter J, Herbison P, et al. Spiritual beliefs, practices, and needs at the end of life: Results from a New Zealand national hospice study. Palliat Support Care. 2017;15(2):223-30. DOI: https://doi.org/10.1017/s147895151600064x
Daaleman TP, Reed D, Cohen LW, Zimmerman S. Development and preliminary testing of the quality of spiritual care scale. J Pain Symptom Manage. 2014;47(4):793-800. DOI: https://doi.org/10.1016/j.jpainsymman.2013.06.004
Ford DW, Downey L, Engelberg R, Back AL, Curtis JR. Association between physician trainee self-assessments in discussing religion and spirituality and their patients’ reports. J Palliat Med. 2014;17(4):453-62. DOI: https://dx.doi.org/10.1089/jpm.2013.0388
Anandarajah G, Roseman J, Lee D, Dhandhania N. A 10-year longitudinal study of effects of a multifaceted residency spiritual care curriculum: Clinical ability, professional formation, end of life, and culture. J Pain Symptom Manage. 2016;52(6):859-872. DOI: https://doi.org/10.1016/j.jpainsymman.2016.06.006
Best M, Butow P, Olver I. Palliative care specialists’ beliefs about spiritual care. Support Care Cancer. 2016;24(8):3295-306. DOI: https://doi.org/10.1007/s00520-016-3135-0
Vermandere M, Choi Y-N, De Brabandere H, Decouttere R, De Meyere E, Gheysens E, et al. GPs’ views concerning spirituality and the use of the FICA tool in palliative care in Flanders: A qualitative study. Br J Gen Pract. 2012;62(603):e718-25. DOI: https://doi.org/10.3399/bjgp12X656865
Selman L, Young T, Vermandere M, Stirling I, Leget C. Research priorities in spiritual care: An international survey of palliative care researchers and clinicians. J Pain Symptom Manage. 2014;48(4):518-31. DOI: https://doi.org/10.1016/j.jpainsymman.2013.10.020
Nichols SW. Examining the impact of spiritual care in long-term care. OMEGA - J Death Dying. 2013;67(1-2):175-84. DOI: https://doi.org/10.2190/OM.67.1-2.u
Trevino KM, Archambault E, Schuster JL, Hilgeman MM, Moye J. Religiosity and spirituality in military veteran cancer survivors: A qualitative perspective. J Psychosoc Oncol. 2011;29(6):619-35. DOI: https://doi.org/10.1080/07347332.2011.615380
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